Mmm…cake!

Although slightly better, I still spent the day in bed. I cannot seem to escape this dang headache though thankfully the new medicine keeps it at bay for a few hours. As soon as it wears off though, it creep back in. Ugh. It seriously sucks. 

I went to bed feeling pretty good LAST night but woke up every 4 hours, presumably when the medicine wore off, in tears and unable to sleep until the medicine kicked in. There’s been a lot of prayers for relief and thankfully God has been answering them with quick relief of the medicine kicking in.  This morning was rough but the medicine allowed me to make it through my draining without issue – another 600 ml there.

My husband made me chicken noodle soup – Ms Gras – which I can’t give up. Every time I have a cold or don’t feel well, that is my go-to soup. I know, I know, it’s probably horrible for me and filled with sodium. It’s what my momma always gave us and I just love that golden nugget. 😉 Of course he knows that I like to cut the water in half-ish and eat with some saltines. It felt so so good to eat a meal again and I chowed down. Yummy!!

Unfortunately, my stomach wasn’t happy that I ate as much as I did and it came back up. Sigh. Well I tried, right? Back to bed to sleep that away.

I do have an appetite today though so I had Joe grab some bread and jam in the hopes of adding that to my repertoire of crackers and bananas. I have also been seeing commercial after commercial for this particular cake at the local grocery store and I couldn’t get that out of my head. One of my coworkers introduced me to the Chantilly Cake at Publix during a potluck a few years ago and my goodness, is it worth every calorie-ridden delicious bite!!

So for dinner tonight, that is what I enjoyed! And ohhh, was it magnificent. I only ate a little because I don’t want to upset my tummy and so far it’s settling in nicely. And frankly, with the way my appetite has been lately, I’m just glad to keep something down.

I hope everyone has had a wonderful week and has great plans for the weekend. Though I’ve spent the week in bed, I hope to regain some sense of normalcy, energy and no flipping headache pain this weekend. I also plan to ship out the Meghan’s Cross orders – yay!!!

Thank you kindly to everyone who has checked in on me and prayed for me this week. And to those that I owe a response to, I appreciate your patience and I’ll get to it as soon as I can. 💚

Keep spreading the love, my dear friends. Much love to all of you! 😘

Whew, a bit of relief…

It’s been a long couple of days. I fell asleep while little man played next to me around 5pm Tuesday night and I have barely moved since. I woke up later that evening with a horrendous headache that medicine barely took the edge off of. Wednesday was a heck of a day. It was spent in my bed, unable to keep anything down – including medicine for my massive headache – and trying to sleep away the pain as best as I could.

I’m not entirely sure what caused this intense headache or vomiting but it’s been awful. When I was able to keep down my headache medicine, it would give me a few hours of relief and sleep until I awoke again in incredible pain. I debated on going to the emergency room and decided to give it until this morning to see how I feel.

I spent most of the night awake and in tears from the pain. I prayed hard that I would be able to keep my next dose of medication down and that it would provide relief. At 3am, God answered that prayer and allowed me to sleep with a dull headache.

Thankfully, this morning I awoke with a dull throbbing. The massive headache of yesterday only came once so far today and I was able to keep the medicine in my belly. It was able to work and I was able to sleep. My head has been throbbing on and off all day but it’s been bearable enough that I don’t feel the need to visit the ER.

I also woke up with a slight hunger and I’ve been able to keep down a banana, an apple and saltines. This is good progress from yesterday!

I’ve still spent all day in bed and will likely remain here for the rest of the night. Thankfully, Joe has been wonderful with Jacob and little man has been helpful in taking care of his momma. ❤

I’ve spoken with my oncologist, who prescribed a new headache medicine in the hopes of offering me some relief. I’ll take it in just a bit, once the crackers in my belly settle.

I had a similar headache when I first started Afinitor, so I wonder about that side effect. It’s also possible that it’s a virus. We took Jacob to the doctor early Tuesday and he is fighting the cold virus and the stomach bug – poor little man! And I can say, I haven’t made much of an effort not to catch either of those.

By tomorrow, I hope that I will awake without any hint of a headache and that my energy level will be up again. It’s been a long couple of days!

Ordering Meghan’s Cross

WOW!! The response to donating for Meghan’s Cross has been nothing short of amazing!!

I understand that there has been some confusion regarding how to receive one, so I updated the Give page with how to order. I’m so sorry for the confusion!

Toni & Mark are already planning to spend some time this weekend making more but in the meantime, I can ship out orders purchased this week! I’m SO excited for everyone to be sharing in the love and faith Meghan’s Cross represents. 

Keep spreading that love! 💚

Meghan’s Cross 💚

Over a year ago, a dear friend of mine handed me a gift that her husband picked out for me. It’s a cross that he made himself. I wrote about it at the time because it meant so much to me. It’s no secret that I was finding my faith again after diagnosis and that the last year of my life, it has grown even stronger. I wear the cross they gave me regularly because I love it and because it reminds me that God is by my side every step of the way – and so are my incredible friends.

See, these crosses aren’t something that they found and thought of me…they are hand made, with love – every single one of them. We enjoyed a meal together recently and at the end of it, they surprised us with an incredibly kind and generous gift. 

They wanted to help us through this journey and help with donations for all that lies ahead. So…they made us crosses to share with you. Each one is quite literally made with love by my friends, Toni & Mark. They even picked out some of my favorite verses and sayings and printed up cards to send with each cross. And if that isn’t absolutely amazing enough! They asked me to say a little something over each cross – like the favorite verse – before they mail it out. 

Looking past their unbelievable generosity, the process of making each cross simply amazes me.

First, they take a box of masonary nails. They secure them into a vice and heat them up with a torch to bend them. Next, they pair each bended nail together to make a cross.

Once paired, they use gold to weld the nails together – creating a bond between the nails and the gold that is unbreakable. Isn’t the afterglow of the brazing amazing?!  I love that these are brought to the fire in one form and made stronger at the end – with a new purpose. Just like the phoenix.

Next, a hole is drilled in the cross and a jump ring is placed for it to be hung.

Now it’s ready to be wrapped with wire around the gold and leather is used to hang the cross. The end product? 

Meghan’s Cross

When Toni & Mark shared with me that they wanted to make these amazing crosses to be sold for donations, I was immediately brought to tears. But then I saw Joe’s reaction and my heart swelled even more.

“I can’t wait for one!” He exclaimed excitedly. I smiled, “but you don’t wear necklaces?” I asked. He looked at me, eyes wide and animated, “but I can hang it from my desk or rear view mirror and always have Meghan’s Cross nearby.” ❤

If you are interested in one of these gorgeous crosses, head over to the Give page or you can mail a check. The crosses are only $15 each! That includes shipping and a few words of love said by Meghan (me!😉) over each one before it’s sent on its way. 💚

If you are local and would love one, let me know and we can arrange a pickup!

I am incredibly excited about these wonderful creations and I cannot wait to share my love for these crosses with you!

Spread the love, my friends!!

Whew – what a day!

It’s been about 3 months since my last follow ups with the brain radiation oncologist and the neurosurgeon, so today I had both of those. I had my routine 3 month head CT last Monday so both doctors were happy to report that my head is stable. Yay!!! Happy dance!!  💃💃💃  My CT looks the same as it did 3 months ago so, as my neurosurgeon said, stable is a great word in their world.

Since I will be having my surgery to remove tissue expanders soon, we talked about how my 3 month follow up will be an MRI instead of a CT of my head. This is a much longer exam, about 45 minutes inside a machine, and uses magnets to take the pictures instead of xrays like the CT. Since it uses magnets, that’s why my tissue expanders need to be removed prior to having one done. I haven’t had an MRI of my head since all of this began, so it’s a good thing to have this as – hopefully – a baseline for what my head looks like now. He indicated that it wouldn’t be surprising to find 1 or 2 very small tumors inside my head on my first MRI. Obviously we are praying for NONE but he indicated that if those 1 or 2 showed up and are not symptomatic, it’s ok, just something that he would want to know and keep an eye on. 

Since the morning was filled with appointments, I decided that it would make sense to use the rest of the day for appointments as well. The radiation oncologist who handled the radiation to my chest was next, where we discussed the never-ending open wound. When she first asked me about it, I told her I didn’t know what to do anymore because it didn’t seem to be doing anything. I showed her and she was excited that it, in fact, did look smaller than it had a month ago. Whew, I can’t tell you what a relief it was to hear that! So although it stinks that it’s still there (stinks is totally not a strong enough word!), at least it is slowly healing even if it doesn’t appear that way to me. She checked out the rest of my radiated field and then commented that the breast cancer on my skin appeared to be stable as well. I had actually had a similar thought this past weekend but it was nice to hear a doctor state that, especially with my rising tumor markers.

Next up was my plastic surgeon. This appointment was a pre-op for my upcoming surgery. My tissue expanders will officially be removed on Thursday, March 9. It was a lengthy appointment and we discussed the pre-op procedures, the actual surgery and the post-op instructions. I’ll have a drain on each side, similar to last year, that will require draining about 3 times a day for about a week (hopefully). No shower for the time that I have my drains, blah, and no changing the bandages until I see the plastic surgeon for my 1 week checkup. I’ll have just the surgical bra and underneath some bandages, steri-strips and internal soutures.

My plastic surgeon decided on a different approach to my incisions over the last 2 weeks. Because he wants to be conservative, he is obviously staying away from the open wound on my chest and has decided to go through my original mastectomy incisions. His initial decision was to create new incisions, under my breast, to stay away from the scar tissue that will have formed on the area of my original incisions. Since there was an extra boost of radiation given to my scars, there is likely significantly more scar tissue formed there. After thinking it over more, he decided that he does want to cut the original incisions, likely close to the original size as well, so that he can remove the tissue expanders and close up my chest without having extra skin leftover. Honestly, neither is ideal and although I didn’t cry today when we talked about it, the idea of no reconstruction makes my heart hurt. I get it and I understand the medical rationale behind it, it just stinks. 

We went over the risks of the surgery, with the most significant risk being that I don’t heal – potentially at all. This is obviously concerning , especially after this open radiation wound, and I asked him to go into more detail so that I fully understand. He indicated that there were certain things that he did not want to get into because he is optimistic about them not happening but did discuss some of the potential issues that I could have if I don’t heal. There is the potential for additional surgeries, infection and even that I quite literally never heal & have open wounds forever. Yikes. Double yikes. My head was swirling a bit and I couldn’t help but second guess the decision to do surgery. But…at the end of the day, the ability to have MRIs is important. The ability to detect cancer at its beginning stages in my brain is extremely important. 

I did have another appointment to end the afternoon but I canceled it previously, knowing that today would be exhausting – which it was.

Since I had so many appointments today, I didn’t have the home health nurse come (the times didn’t work out) and instead Joe drained my lung for the first time. I am always nervous about pain now but he did awesome and stopped as soon as I mentioned that it was starting to hurt. Another 725 ml drained this morning – ugh. But, I at least feel better for a bit!

Todaybwas a bit long. Thankfully, I am blessed with an amazing husband that was by my side for all appointments. This man never ceases to amaze me and I continue to be reminded of his unwavering faith in me. I can’t imagine anyone else helping me to make these impossible decisions.

I hope your week is off to a wonderful start! Enjoy this day and snuggle your loves!! 💚💚💚

“My ‘noculars!”

I can’t stop looking at these pictures from school today – and I love my big hug before he headed there!

Jacob received his “noculars” as a Christmas gift from Grandma & Grandpa. They were a thoughtful gift to help Jacob find fish when out fishing. He absolutely loves them and hasn’t really put them down since Christmas. He likes to take them everywhere and will often bring them in the car and tell us what he sees through them, including mommy and daddy.

For the last week, Jacob has been asking to take them to school. Typically when he does this with a toy or book, we can talk him out of it because he doesn’t want to lose them at school. And we promise to bring them with us when we pick him up. With the binoculars though, he wouldn’t take no for an answer. He was so adamant that we asked the teachers if it was OK that he kept them with him. They happily agreed (oh gosh, I sure hope he is sharing!) and I don’t think he’s missed a single day of bringing them with him since.

He accidentally left them at school last night and was a bit distraught over not having them. When we explained that he would find them at daycare when he went, he was anxious to hop in the car and get there. I imagine he found them soon after arrival and didn’t take them off much afterwards. 

His school uploaded the pictures of him drawing on paper and then checking it out with his binoculars. I love it so much! They are helping him to embrace the use of his favorite toy and learn more about how he can use it. I love that he has such a wonderful imagination to go along with these binoculars and that his school helps him to foster that. I love that he loves a toy that has practical uses. I love that he enjoys his binoculars so much. I love everything about these pictures. 

I love that I see these pictures and it makes me take a step back in my own life. It’s easy to get caught in the thick of things and lost in the weeds. It’s hard to pull yourself out and find yourself & your purpose again. Feeling as badly as I have recently, I have been losing myself in those very weeds, focusing solely on the pain and discomfort. 

But there’s so much more to it. There’s all last week, which I am still not over emotionally. There is all of the incredible upcoming events and visits that are planned. There are the little things (that are actually quite big in the long run), that I want to incorporate into my everyday routine and have no excuse for why I keep pushing them out. There’s my purpose, my desire, that I want to focus on now, not later.

No, I can’t stop the way that I feel physically, but I can take a look through a different lens and see the things that I want to focus on. Things that I’ve been excited about but pushed aside because of the way that I have felt recently. 

It took Jacob and his noculars to remind me that I am in control of the lens that I use to see life through. It’s time to start using the one that helps me focus on what’s truly important. It’s time to switch my lens.

Pain, pain, go away!

It’s a rainy day here in Central Florida…one that worked well with my impromptu nap this afternoon! It’s crazy to think that the week is already half over. I spent almost all weekend and a lot of this week “relaxing”. This really means that I’ve been too tired or uncomfortable to do anything. Thankfully my husband and little guy have been wonderful with taking care of me and ensuring my comfort.

I’ve consistently been draining a lot of fluid from my lung, which is drained every Monday, Wednesday and Friday. Last week ended at 850 ml, which was the amount drained again on Monday, and then 600 ml today. I owe a phone call to the doctor because Monday and today’s drainings hurt enough that I asked them to slow down and stop. I’m not sure if it’s close to the end and that’s why it hurts or if the tube is in a weird spot. It’s worth the ask, either way. The fluid causes discomfort and pain in my chest because it fills so quickly and in general, my back has been hurting a bit. I imagine this is also caused by the fluid but who knows.

My appetite is not awesome and I’m losing weight rather quickly because of it. This may be because of the mixing of chemo pills, Afinitor and Xeloda, so we will see how I feel during my week off, starting tomorrow. During my first trimester of pregnancy with Jacob, I had major food aversions. Everything seemed to upset my stomach and I basically lived off of cereal (this actually remained true throughout the rest of my pregnancy). Just the smell of foods would make my stomach turn. Even the times that I would crave something like crazy, I would eat it and immediately it would become unbearably unappetizing to me. This is reigning true now, only times about 10. Thank goodness for smoothies.

I’ve been able to get things done off of my to-do list, which helps me to feel accomplished, though my list is taking significantly longer to accomplish than it once did. I’m tired relatively quickly and often need to lay down after crossing a few things off. I’m grateful to be able to accomplish as much as I can, despite not feeling wonderful. 

It’s frustrating. The pain, the discomfort, the utter exhaustion and the overall feeling of not being well…it sucks. Throughout most of the last year and a half, I have been able to push through the times that I’ve felt bad, knowing that I would eventually feel good again. I’m struggling with that right now. The times that I feel bad are becoming more frequent than the times that I feel good.  And that hurts. I don’t like that. Despite putting on a smile and going out to do something, I am finding it harder and harder to force aside the feeling of discomfort. It’s frustrating because I want nothing more than a sense of normalcy, for my family to feel comfortable going out with me and enjoying our time together, rather than worrying if I am doing ok. I know they will worry either way, it’s just hard to come to terms with the fact that my new normal changes by the day. 

Tonight Jacob asked me if he could bring me to the doctor to feel better. While his innocence warms my heart, it stings for him to know that I’m not feeling well. I told him that I went to the doctor and have medicine to help me get better. He squealed in excitement at that and hugged me big.  He exclaimed, “Yay!! You get better! Did you see Dr T?” I laughed at his reference to his pediatrician (it amazes me what he remembers!) and held back tears, knowing that I will never get better despite his excitement.

I don’t share this for pity or to cause concern. I am not giving up and I know how very blessed that I am – if the last week has shown me nothing else, it’s that I am truly blessed. I share this because it is the reality of how I feel in this moment. Cancer sucks. It’s not all pink and frilly, sprinkled with rainbows & butterflies with a dash of survivorship. It’s constant pain, a forced smile and a lack of appetite. It’s a hope for a good day, the need to not have to nap, and to sleep through the night without waking up in pain.

It’s not letting my family see the struggle or witness the constant discomfort. It’s being afraid to make plans for the future, out of fear of how I will feel. It’s wondering if I will truly feel worse than I do during my worst moments now.

But, I will push all of those thoughts and feelings of discomfort aside. I will hug my boys and snuggle them to sleep. I will watch them breath deeply with sleep, knowing that for now I am blessed to wake up by their side and embrace another day with them. That, in itself, is one of the biggest blessings of all.

💚