Sometimes the reality of situations we have to deal with on this Earth just simply stink. There is no sugarcoating them. Yes, we can see the many blessings and comforts from God that happen through these situations, however those don’t necessarily take away the emotions you feel.
Here is our factual reality right now.
Meghan continues to be uncomfortable, well, let’s call it what it is….she is in pain. The doctors are doing a diligent job trying to manage her pain. She now has a PCA (Patient-Controlled Analgesia pump) which allows her to push a button to have a dose of pain medication released whenever she needs it (no more than every 10 minutes) in addition to what she is getting through her IV. This has seemed to be helpful for her.
She will not be able to eat or drink anymore and therefore a feeding tube of some sort is needed. We made an attempt with a feeding tube that runs through her nose today. I will spare you the details, but it was awful and did not work out the way we had hoped. Tomorrow Meghan will start to receive some nutrition via her IV, however this will not necessarily satisfy her extreme hunger, which is concerning. It is heartbreaking to hear her constantly ask for food and water and not be able to give it to her.
Meghan got to spend time today with her parents and sisters, which made her so happy.
And here is where it gets harder-
Yesterday Joe and I met with Hospice. We are realistic about where this situation is heading. Our families #1 priority is for Meg to be as comfortable as possible for the rest of her time. Once the pain management is under control and the other Pleurx Catheter is inserted, Meghan will (hopefully) get to go home and be in her own bedroom. The thought of her being able to watch T.V. while snuggling Jacob in her bed brings a sense of peace.
One of the programs offered by the hospital provides support for families with young children. A Child Life Specialist visited today to help Joe and Meg come up with a plan for how to help Jacob cope with what is going on. She was simply amazing. She provided a list of activities that Meg will do (with our help) to leave a legacy behind for Jacob. She brought toys in for him to play with while he visits. She also brought a canvas and had Meghan make handprints on it for Jacob to have. The idea is that Meg will come up with words of wisdom for Jacob and we will write them on the canvas. Are you crying yet? Whoever invented a program like this was clearly being used by God!
Again, thanks for everyone for reaching out and praying for Meghan. I don’t know how to respond when people ask how they can help. The only thing that comes to mind is to please comfort our family. Reach out to my mom, dad, and sisters, I know that they can use someone to talk to. Joe’s parents have been so helpful with Jacob-please pray for strength and peace for them.
Most of all pray for peace for the Hall family.