This weekend has been a little rough. I mentioned the other day that I’m incredibly exhausted. It hit me hard this week, which could be because this week back to work, and all aspects of life, was chock-full.
The right side of my back has been bothering me for a few days. It’s not horrible but it hurts. I am getting a chest xray next week though, so I’m not too concerned for now.
So then I woke up before the sun did on Saturday with insane heartburn. I had it horribly bad with chemo in 2015 and radiation last year but this time might take the cake. Just like before, it hurts in my esophagus as if I have burning actually in that area. It almost feels like a pill or 10 got stuck. So I started back up on my medications from before and Googled whether or not it is a side effect of Afinitor. It’s not, which is surprising. Something like 17000ish people were asking about their side effects and 7 of them reported heartburn. I’m gonna go with no… 😉
Anyway, so then Joe & my mom both mentioned the same issue – ridiculously painful heartburn. Joe even takes medicine for it and it’s not helping. So as much as it sucks, we are hoping that perhaps it is just something that we ate and will go away in another day. Otherwise, I I’ll be asking my oncologist before vacation.
So between exhaustion and heartburn, I’ve spent most of the weekend in bed. I feel as though I could sleep for days. I’m curious when they take my blood on Wednesday if they will require a transfusion or not. Perhaps there is something else that they could give me to help…who knows. We shall see this week!
Anyway, so then there’s my tumor markers. They were drawn this week and I debated on whether or not I wanted to see them. It’s a rather hard decision because I am cautiously optimistic of this Afinitor and afraid that seeing the numbers continue to go up will hurt. I debated on whether or not knowing is worth it if my numbers are still rising. A true struggle, right?
In the end, wanting to know won. I kept touching my neck and wondering if I’m not touching the right area and maybe it’s actually still swollen. Or maybe it’s the essential oils that are helping the cancer on my skin. Or maybe a hundred other things. And do I want to go on vacation wondering if this is the last one I’ll ever take?
I decided that I needed to know if this drug is working because I want to tell my son that our next cruise will be just as incredible…and know that I am telling him the truth.
I had my tumor markers taken when I had pleural effusion and my CEA was 11.4 and my Cancer Ag 15-3 was 23.3 on December 19th. It was up from November 30th, when my CEA was 8.7 and my CANCER AG 15-3 was 18.3.
My Cancer Ag 15-3 has always been within the normal range (under 31.3) but it has always gone up and down with treatment and progression. My CEA though has always been a solid indicator for me (anything under 3 is considered normal).
On January 5th, my CEA was 10.2 and my Cancer Ag 15-3 was 17.5.
They went down. Yes, it’s just a little. Yes, my CEA is still high. But they are down now. And they were climbing in December.
Down. They are down.
Oh, this makes my heart smile. I know things can change in an instant and with cancer they often do. But right now, my numbers are down. This treatment, though not standard for me, may actually be working.
I may be number 2.
Happy Sunday to that, my friends. 😙