Yesterday was a long day of travel but I am so glad for the trip! My sister met us at the airport, brought us to Dana Farber and took little man with her to hang out with the rest of my family who met us here. My cousin works in the pathology section at DF so she met us for the appointment and helped ask questions along the way. It was awesome!
We learned a lot yesterday. The doctor was very thorough in my history and my exam. One thing that she recommended was to do a panel on my recent biopsy to look at it further and determine what potential mutations may be occurring within my cancer. This process takes up to 3 months for review so we started that. I thought that was super interesting and I am curious of the results, especially knowing that my cancer grows quickly. Combined with the generic testing from Moffitt and I think we are covering our bases.
She went over a lot of treatment options that are potentially available to me, including standard chemo and clinical trials in the area. Until we know for sure if the Xeloda is working – and we are optimistic – she agrees with the current approach. We know that any treatment will eventually stop working (kind of like the overuse of antibiotics, they become obsolete) so I am glad to hear that we have other ways to fight this disease. My cancer is responding to radiation according to my previously radiated skin and lymph nodes (no active cancer there now), so she is hopeful that I will also respond to radiation this time on my right.
Moffitt mentioned yesterday and DF said again today that we anticipate my brain tumor to come back elsewhere up there at some point over time but meanwhile we are doing the pathology on it to ensure we are targeting it correctly. We are also doing the radiation on it this month to keep the cancer away from that area. There will come a point when I will likely need whole brain radiation but that will depend on where lessons pop up. So we are praying for none!
The visit was great and the doctor was wonderful. There is a lot to consider and I think that the different options available to me in each area is worth the trip all in itself. Building these relationships and ensuring we talk through every detail is so important!
That’s all for now. Off to enjoy this gorgeous Boston day! 💋💚