Hello, world!

Here I am! Life has been crazy, as always. I’m making progress with appointments and the month of August is set to be a crazy one! I’ll enjoy this weekend for what it is before hitting the ground running next week.

I visit Moffitt Cancer Center in Tampa on the 11th, Dana Farber in Boston on the 12th, Emory in Atlanta on the 19th, Mayo Clinic in Jacksonville the 25th and Sloan Kettering on the 1st of September. It’s a LOT of travel and the logistics themselves are exhausting when mixed with radiation but we will get through it for sure!

Long story short, I have not yet begun radiation to my chest. There have been a lot of tears and frustrations but at the end of the day, it is what it is. I am awaiting “approval” to begin. It sucks that I’ve been spinning my wheels for over a week but I trust that there is a reason and a method to this madness. The pills and radiation are supposed to have intense effects together so I will take it as a blessing in disguise and focus my time and energy on things that I can control.

The steroids have been keeping me up at night so I’m not sleeping as well as I know I should, despite being tired. Waiting to confirm that melatonin is safe to take with my pills, in the hopes of trying a natural remedy.

The pills themselves have been relatively uneventful in terms of side effects, so that’s exciting! I am a week in today so I am remaining optimistic that they are hard at work inside of me, fighting this awful disease. 

I continue to be amazed at the incredible outpouring of love and support that my family receives. We are blessed beyond measure and grateful for each and every person that crosses our path. Whether you know it or not, we thank God for you each day.

That’s all for now. Back to the grind and spreading the love, my friends! 💋💋💋

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4 thoughts on “Hello, world!

  1. Wowza! Bring lots of snacks for all that travel.
    I had a naturopathic oncologist while in treatment, and was given a 20mg daily dose of melatonin. Not sure if it goes with what you are on, but there is hope! I do think it helped. Also because I knew that I have a system that processes drugs more slowly – I was able to reduce my steroid dose after talking to my doctors. (I could go into how we figured out dosage woes, but too long. Sufficient to say Every body is different- )
    So here’s to you getting some naps, and good sleep at night! And safe travels!
    Xo

    Liked by 1 person

  2. Oh and here’s to a radical remission! As in “Wait, where did all the cancer activity go? I mean it was here a minute ago, and then Blammo, flash of light, you are completely NED!”
    Love love

    Liked by 1 person

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